Friday, July 03, 2009

Help!!!!!



Linda's daughter, Carrie, is in a hospital in South Jersey. She had complications after delivering a baby girl two weeks ago. She's extremely critical. A large cloud is hanging over life. Please pray for her. Thanks
( Pictured:Carrie, her brother Michael and Linda)
(1 month later, July 19th)
She made it! A long road ahead. Thanks for your support and prayers. It's meant everything!
(Oct 4th, 2009)
Carrie's still in the hospital because of insurance red tape. Probably going home next week with a with a visiting daily nurse. Waiting for the call for a small intestines transplant at The University Of Pittsburgh. Hurdles still ahead.
(Oct 31, 2009)
Carrie's been home and back in the hospital three times. Currently back in Cooper Hospital in Camden. The longest she's been able to stay home without problems developing is about four days. Currently gall bladder problems resulting from her TPN. Waiting for the word from Pittsburgh to go for the evaluation and then transplant. Thanks for your prayers and inquiries.
(Nov, 24, 2009)
Linda and Carrie have been in Pittsburgh for a week and a half now. The insurance issues between NJ, Pittsburgh and Ohio (where Carrie will be staying with her brother, post evaluation) have been a nightmare.Thank God Linda's been on the case correcting everyone's mistakes and making sure things get done. Some of the problems are severe...... like NJ insurance and Pittsburgh insurance unable to decide who will supply her TPN, the intraveneous nutrition that she has to have ten to twelve or more hours a day. She's had to miss a couple of days here and there because of it. Not good! Just one instance, of many, of beauracracy gone wild! She's had some tests and is getting ready for a two week evaluation process . She was in patient till today and is now out patient for the evaluation. Then.....provided the evaluation goes in her favor.....we wait for an available small intestine. As of today Carrie and Linda are living together in housing near the hospital for families of patients. Here's to peace in Pittsburgh!
Dec 30th, 2009
Carrie and Linda are back from their third trip to Pittsburgh. Miles....and miles...... The evaluation is over and now Carrie is, or shortly will be, on the list for a small intestine. The co ordinator seems to think it won't be long.
Jan 19, 2010
Carrie and Linda left for Pittsburgh today at 4:30 am. Carrie has to have some tests that she probably should have had while she was out there during previous visits. She was due to be put on the transplant list anytime and just got the word a few hours ago that she's been listed. Now we wait for the call for an available small intestine. That'll be a good day for us and, unfortunately, a sad day for someone else. Whomever you may be......thank you. So Carrie's there for the duration. She'll be staying in Ohio with her brother, Michael, and his fiancee. They're about an hour away from the hospital and that's a good thing. Once the call comes in she's got to be at the hospital asap. Linda's been a trooper. A great mom and a wonderful partner. We're all lucky to have her in our lives. Seven months ago I promised Carrie this would all be over by Feb 19th. I don't know why I blurted out that date but I just realized that was my grandmother's birthday. Hmmmmm......
Feb 1, 2010
Had the first false alarm last Saturday. In the morning we got a call that a small intestine would be available sometime that day. I had a gig that nite and as I was packing up...around 1 am, I got a call from Linda that Carrie was on her way to the hospital and things were moving. Linda lef, drove all night and hung out at the hospital all day Sunday. The surgery was set for 4 pm. Around 3 pm the doctors decided the match wasn't close enough. The intestine was from a fifteen year old boy. Quite a reality check. His liver would also be donated.
March 13, 2010
This past Tue night the call came in. Linda took off for Pittsburgh around 10 pm. The surgery started around 11 pm and continued till around 11 am. Carrie has a new small intestine, said goodby to a gall bladder and appendix and is doing great this morning. God bless the donor (a nineteen year old Alabama boy) and family. Thank you. Thank you. Thank you. A long recovery to come. But this is one feisty chick! Thanks for all your inquiries, prayers and support. Peace.
March 27, 2010
Carrie celebrated her 28th birthday on Mar 17th. She also had another surgery that day to remove a hematoma. She had a second surgery the next day to stop some bleeding. Since then she's responded extremely well to the new intestine and the future looks good.